JEDDAH: Observed each year on April 17, World Haemophilia Day stands as a solemn global platform dedicated to illuminating the realities of Haemophilia—a rare, typically hereditary condition wherein the blood’s ability to clot is impaired owing to a deficiency of essential clotting factors—alongside other inherited bleeding disorders. The observance underscores, with renewed urgency, the imperative of timely diagnosis and the provision of effective, accessible care.
In consonance with this global mandate, the Saudi Kerala Pharmacists Forum convened a thoughtfully curated webinar via the Google Meet platform, drawing attention to the critical importance of early detection, judicious therapeutic intervention prior to clinical deterioration, and the expansion of equitable healthcare access for patients worldwide.
The programme, conducted under the resonant theme “Diagnosis – First Step to Care,” was distinguished by an erudite keynote address delivered by Dr. Javed Ahmed. With clarity and conviction, he articulated that the advancement of early diagnostic practices, coupled with improved access to treatment, constitutes a cornerstone in enhancing the quality of life for individuals living with Haemophilia. His discourse wove together medical insight and humane sensitivity, emphasizing that timely care, heightened awareness, and robust community support from the triad upon which meaningful progress rests.
Dr. Ahmed further presented a comprehensive and incisive exposition on the pivotal role of early diagnosis, delineating the spectrum of available therapeutic modalities while also casting light on the multifaceted challenges that patients endure in their pursuit of sustained well-being and resilience.
The webinar attracted a diverse and engaged audience comprising pharmacists, healthcare professionals, and members of the public. In a dynamic interactive session, Dr. Ahmed responded with thoughtfulness and precision to a range of queries, dispelling misconceptions and deepening participants’ understanding of the condition.
A particularly poignant moment unfolded when an attendee living with Haemophilia—then on a path of recovery—shared a deeply personal narrative encompassing both individual and familial experiences. This candid testimony brought into sharp relief the profound and often arduous impact of the disorder, offering invaluable perspective that enriched and sensitized both the public and the medical fraternity.
The programme commenced with a serene recitation from the Qur’an by Mohammed Thwayyib and was presided over by Dr. Suhaj Abdul Salam, while Abid Parakkal ably moderated the proceedings. Shabeer Ali Thorakkatil extended a formal introduction to the guest, and Yahya K.K. presented a token of appreciation to Dr. Javed Ahmed. The occasion was further elevated by brief yet meaningful addresses from Hanifa Parakkal, Yunus Mannisseri, and Rifadh K. Saidu.
Mahesh Palliyalthodi delivered the welcome address with grace, and Yasir K. Pari concluded the event with a heartfelt vote of thanks, bringing the proceedings to a dignified and reflective close.
Guided by the vision of the World Federation of Haemophilia, the initiative by the Saudi Kerala Pharmacists Forum conveyed a compelling message—urging healthcare professionals and communities alike to fortify support systems, deepen collective understanding, and strive steadfastly toward improved care and an enhanced quality of life for those affected by Haemophilia.
M. Siraj
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